Hey HAE Hereditary Angioedema Blog: Connect. Ask. Share.
FIRAZYR is a medicine used to treat acute attacks of hereditary angioedema (HAE) in adults 18 years of age and older.

Attack the Attacks

From Triggers to Treatment

Published on January 06, 2016 in Attack the Attacks

With HAE being a rare disease, there were not a lot of people or medical professionals familiar with it.

 

I recall the frequent attacks affecting our day to day life:

  • We were forced to cancel plans
  • My husband missed several days of work each month
  • People stopped inviting us to events.

 

One of the most frustrating things that stands out in my mind is how unpredictable HAE is. We keep track of what we feel triggers my husband’s attacks…

  • Certain physical activities
  • Physical stress from lack of sleep
  • Mental stress

…and do our best to avoid them.

 

But as a police officer, his lifestyle has been a recipe for HAE attacks.

 

Our HAE treating physician told us about FIRAZYR® (icatibant injection), a treatment for acute HAE attacks in adults 18 years of age and older. FIRAZYR is a self-administered treatment that my husband can use at the onset of every acute HAE attack. It’s also portable, so he can carry his FIRAZYR when at work and traveling.

 

Of course, there are the risk of side effects with FIRAZYR, such as injection site reactions, fever, and dizziness. Other side effects include nausea, headache, and rash.

 

After talking about the “pros” and the “cons” with his doctor, my husband now treats every HAE attack at onset with FIRAZYR. He feels like he’s doing what he can to take charge of his HAE

 

How did you decide to treat with FIRAZYR? Leave a comment below!

 

--Stacey 

 

If you have HAE, you may want to talk with your doctor about treatment options. If you want to talk about FIRAZYR with your doctor, click here to sign up for more information, including a page that you can download and take with you to your next doctor’s appointment. If you and your doctor decide that FIRAZYR might be the right treatment option for you, he or she can request a single dose of FIRAZYR as a sample for you to try.

Add Comment


The information on this page is owned and controlled by Shire. All submissions will be reviewed and must be approved by Shire before being posted. Comments that do not directly relate to the topic, are factually inaccurate or misleading, or are spam, inappropriate, use profanity or are defamatory will not be posted.

Please keep your comments respectful, appropriate and do not reference any product names or product information. We will not post comments that include drug names or descriptions. Please note that Shire may choose not to post, or may remove, a comment for any reason at any time. Comments on the page from members of the public do not necessarily reflect the views of Shire and Shire does not endorse any content added by other users.

We are required to record and handle the submitted comments in a specific manner to monitor the safety of our product. If you have experienced a side effect or have a complaint specific to a Shire product, please contact your healthcare provider. In addition, we encourage you to report the event to us by calling +1-800 828-2088 or +1-888-300-6414, where someone is available to speak with you.

The information on this page is intended for residents of the United States only and is not meant to substitute for the advice provided by a medical professional. Always consult a physician if you have health concerns.

What is FIRAZYR?

FIRAZYR is prescribed to treat acute HAE attacks in adults 18 years of age and older.

Get the facts »