When it comes to getting things done with my hereditary angioedema, the more prepared I am, the calmer I feel. That’s true at most times, but especially when I want to go out into the beautiful world on vacation!
Here are the top things I keep in mind when planning a vacation:
I make sure to bring enough medication for the entire duration of the trip, and that includes having my FIRAZYR® (icatibant injection), a medication for the treatment of acute HAE attacks in adults 18 years of age and older. I check TSA rules beforehand (just in case something changes). Then I keep my medication, with the pharmacy label still on, tucked in my carry-on luggage so that it’s always by my side—even during flights.
2. Doctor’s Note
In the event that airport security requires more information, I like to have my doctor’s note handy. It includes information regarding my HAE diagnosis, and a brief explanation of my medications and dosages. I feel more confident having the note.
3. Local Healthcare
Wherever I am, I have found that it is a good idea to be familiar with the area. Are there Emergency Rooms nearby just in case? Would I know how to reach them? Being aware and having a route in advance gives me peace of mind.
4. Information regarding HAE
If I do end up needing medical attention, going to a new place can be challenging. There is a possibility that the healthcare providers I interact with are unfamiliar with HAE. That’s why I make sure to have information regarding HAE on hand, including that doctor’s note I mentioned before. Having that with me has been beneficial.
5. Loved Ones
When travelling, I am often on my own, but on the occasions I travel with family or friends, I like to keep them in the loop regarding my plans. The more they know, the better they will be able to help if I need it.
6. Rest Time
Trips can be jam-packed with excitement, but I’m not afraid to take a few quiet moments to relax in between all the fun—I know my body will thank me!
Vacations are rarely perfect. That’s why I try to embrace each moment, by knowing I am as prepared as I can be for whatever comes my way.
How do you prepare for your vacations with HAE? Leave a comment!
If you have HAE, you may want to talk with your doctor about treatment options. If you want to talk about FIRAZYR with your doctor, click here to sign up for more information, including a page that you can download and take with you to your next doctor’s appointment. If you and your doctor decide that FIRAZYR might be the right treatment option for you, he or she can request a single dose of FIRAZYR as a sample for you to try.