Hey HAE: Connect. Ask. Share.
FIRAZYR is a medicine used to treat acute attacks of hereditary angioedema (HAE) in adults 18 years of age and older.
Share / Send / Save

Attack the Attacks

Three Things I’ve Done to Pass the Time After a Severe HAE Attack [Infographic]

Published on October 22, 2014 in Attack the Attacks

The downtime I have waiting in the hospital can seem like a lifetime. But, over the years, I’ve come up with ways to help me pass the time in a productive way. Today, I want to share three of those things with you.

  1. Sharing my experiences with HAE with healthcare providers

I’m not a doctor, but sharing my experiences with HAE can help healthcare providers better understand what people living with HAE deal with. I believe understanding our struggles as patients is just one step in being able to better treat us. Some healthcare providers are extremely interested in learning more about HAE, so I like to tell them about websites like www.haea.org. Some websites offer continuing education credits, which is a double win for healthcare professionals!

  1.  Taking time to reflect

While in the hospital, I take the time to try to relax and reflect on life. When I can, I like to keep the lights dim and the atmosphere serene. Keeping composed and quiet seems to help me be able to talk calmly with my doctors.

  1.  Keeping track of my attacks

During the downtime waiting in the hospital, I take time to update my HAE attack log with the current attack. I log the location, severity, treatment and the time that I start feeling relief in the symptoms of my attack. I keep this log up-to-date to make it easier to discuss all HAE events that may have come up between visits with my specialist. Having everything in writing keeps me from guessing and creates a more honest relationship with my healthcare provider.

These are just three of the things I do to pass the time in the hospital. What are some of the things you do? Please leave a comment and let me know!

--Mike

Infographic about three things you can do to pass time in the hospital after a severe hereditary angioedema (HAE) attack

If you have HAE, you may want to talk with your doctor about treatment options. If you want to talk about FIRAZYR® (icatibant injection) (a medicine used to treat acute attacks of HAE in adults 18 years of age and older) with your doctor, click here to sign up for more information, including a page that you can download and take with you to your next doctor’s appointment. If you and your doctor decide that FIRAZYR might be the right treatment option for you, he or she can request a single dose of FIRAZYR as a sample for you to try.

Add Comment


The information on this page is owned and controlled by Shire. All submissions will be reviewed and must be approved by Shire before being posted. Comments that do not directly relate to the topic, are factually inaccurate or misleading, or are spam, inappropriate, use profanity or are defamatory will not be posted.

Please keep your comments respectful, appropriate and do not reference any product names or product information. We will not post comments that include drug names or descriptions. Please note that Shire may choose not to post, or may remove, a comment for any reason at any time. Comments on the page from members of the public do not necessarily reflect the views of Shire and Shire does not endorse any content added by other users.

We are required to record and handle the submitted comments in a specific manner to monitor the safety of our product. If you have experienced a side effect or have a complaint specific to a Shire product, please contact your healthcare provider. In addition, we encourage you to report the event to us by calling +1-800 828-2088 or +1-888-300-6414, where someone is available to speak with you.

The information on this page is intended for residents of the United States only and is not meant to substitute for the advice provided by a medical professional. Always consult a physician if you have health concerns.

What is FIRAZYR?

FIRAZYR is prescribed to treat acute HAE attacks in adults 18 years of age and older.

Get the facts »

Upcoming Events