The downtime I have waiting in the hospital can seem like a lifetime. But, over the years, I’ve come up with ways to help me pass the time in a productive way. Today, I want to share three of those things with you.
- Sharing my experiences with HAE with healthcare providers
I’m not a doctor, but sharing my experiences with HAE can help healthcare providers better understand what people living with HAE deal with. I believe understanding our struggles as patients is just one step in being able to better treat us. Some healthcare providers are extremely interested in learning more about HAE, so I like to tell them about websites like www.haea.org. Some websites offer continuing education credits, which is a double win for healthcare professionals!
- Taking time to reflect
While in the hospital, I take the time to try to relax and reflect on life. When I can, I like to keep the lights dim and the atmosphere serene. Keeping composed and quiet seems to help me be able to talk calmly with my doctors.
- Keeping track of my attacks
During the downtime waiting in the hospital, I take time to update my HAE attack log with the current attack. I log the location, severity, treatment and the time that I start feeling relief in the symptoms of my attack. I keep this log up-to-date to make it easier to discuss all HAE events that may have come up between visits with my specialist. Having everything in writing keeps me from guessing and creates a more honest relationship with my healthcare provider.
These are just three of the things I do to pass the time in the hospital. What are some of the things you do? Please leave a comment and let me know!
If you have HAE, you may want to talk with your doctor about treatment options. If you want to talk about FIRAZYR® (icatibant injection) (a medicine used to treat acute attacks of HAE in adults 18 years of age and older) with your doctor, click here to sign up for more information, including a page that you can download and take with you to your next doctor’s appointment. If you and your doctor decide that FIRAZYR might be the right treatment option for you, he or she can request a single dose of FIRAZYR as a sample for you to try.