When I look back to when I first learned of my husband’s hereditary angioedema (HAE), it feels like a lifetime ago. I spent a lot of time trying to educate myself about HAE. I was certain that together we could deal with HAE, but I learned quickly that was easier said than done.
Attack the Attacks
In my experience, hereditary angioedema (HAE) is an unpredictable disease. Sometimes, it seems like attacks can happen whenever they darn well please. For that reason, it’s good to have a plan in place to help you prepare for the uncertainty of HAE attacks.
Have you been diagnosed with hereditary angioedema (HAE)? Do you want to hear the experiences of someone who shares your rare disease and treats acute HAE attacks with FIRAZYR® (icatibant injection), a medicine used to treat acute hereditary angioedema (HAE) attacks in adults 18 years of age and older? Consider signing up for a You, Me, and HAE Mentor call.
Between working full-time and being a wife and mother, I haven’t always put my own needs first. For both my sake and my family’s, I’ve had to learn to be more mindful of my well-being. I pay closer attention to the “when” and “why” of my acute hereditary angioedema (HAE) attacks, and I talk about some of the triggers I’ve noticed in this video post.
In working with my healthcare team, I have chosen to treat every HAE attack. I have learned that, with my body, even a small swell on my hand could eventually lead to a larger, more painful, attack. It could take hours or days for me to get to that point, but I don’t want to wait around to be sick and in pain later on. For me, early treatment is the key and making sure the people around me know about my HAE in case of an emergency.