When I was first diagnosed over 20 years ago with hereditary angioedema (HAE), only my close family and friends were aware. I didn’t know much about HAE at the time and I certainly wasn’t aware of what different HAE attacks were capable of doing to my body. Therefore, I didn’t say much about my HAE to other people.
HAE and Family
Once learning of my husband David’s disease, I had a decision to make—allow his hereditary angioedema (HAE) to dictate our lives or dive in headfirst and do my best to support my husband. I choose to support David for a number of reasons, but mostly for the simple reason that I care. He doesn’t always verbalize his gratitude, but I know what my support means to him. I can tell that he values my support by the way he trusts me to help him.
For me, planning for a vacation is no simple task. Who knew that taking a simple day trip or vacation required so much planning and preparation? Surprisingly packing isn’t our biggest challenge. I’ve come to realize that traveling with someone who has hereditary angioedema (HAE) requires extra planning considerations on my part.
Having multiple family members diagnosed with hereditary angioedema (HAE), I’ve come to know HAE pretty well. Although, due to the unpredictability of the disease, there are still quite a few things I don’t understand. Luckily, having people around who understand my journey has resulted in a bond that’s helped me through many of the ups and downs of HAE.
My husband didn't know what he was getting into when we were married all those years ago, since I hadn't had any recognizable hereditary angioedema (HAE) attacks before our wedding. However, even though HAE has brought us great pain and sorrow, he says he wouldn't have changed his mind—he wouldn't have left me at the altar! For that, I have to be thankful.