For me, I sometimes feel like anything and everything can affect my hereditary angioedema. When the seasons change, so does the temperature—and my family’s routines. Those are just two of the three main changes that may mean a change in my acute HAE attacks, too.
Attack the Attacks
My motto when it comes to overcoming my fears is this: Just breathe, and take the leap! But in some cases, like when my doctor and I discuss using FIRAZYR® (icatibant injection) to treat my acute HAE attacks, I make sure it’s an educated, well-trained leap! FIRAZYR is a medicine used to treat acute attacks of hereditary angioedema (HAE) in adults 18 years of age and older.
When I was diagnosed with hereditary angioedema (HAE) more than 20 years ago, my loved ones worried that people would treat me differently if they knew I had a “disease.” They said I should call my HAE a “condition.” Instead, I just never really said too much at all about my HAE. But since then I’ve learned that it’s OK for me to be open about HAE.
Living with hereditary angioedema can mean that trips to the hospital are sometimes unavoidable and unpredictable. Even when you have a treatment for acute HAE attacks, it’s important to remember that you still have to go to the hospital for throat attacks. When I do have to go to the ER, those trips can sometimes last for hours, and counting the ceiling tiles is only fun for a little while. So, over the years, I’ve learned how to make the most out of my time while at the hospital.
Once I decided to be serious about taking care of my hereditary angioedema, I started by being honest. Not just with myself and my wife, but with my healthcare team as well. It wasn’t easy at first for a sometimes stubborn guy like me, but it has definitely made a difference in the care I’ve received from my healthcare providers.