Hey Mike, I know right now it’s hard to believe that the future could be any different. How long have you and your family suffered with this disease that so many people don’t understand? But keep faith; it will get better.
The first time I had visible signs of swelling, I was at my parents' house. My parents weren’t home, so when I woke up with both of my hands and wrists swollen, I was pretty scared. They were still swollen when my parents came home and no one could figure out what was happening. [Note that prescription FIRAZYR® (icatibant injection) is a medicine for adults 18 years of age and older to treat acute attacks of hereditary angioedema (HAE).]
To get the most information and the best discussions out of my doctor’s appointments, I believe it is crucial to be proactive: To take ownership, be ready to communicate clearly, and ask the appropriate questions. Arriving prepared is of utmost importance. These are the lessons I learned right from the time I was diagnosed, and they’ve been lessons I’ve followed ever since!
I feel lucky that my doctor ordered a screening test that indicated HAE pretty soon after I told him my symptoms.
Dear Younger Self, I look at you and my heart swells with pride at the sheer courage and resolve you show in facing the mysterious symptoms of your HAE attacks. Yet at the same time, my heart breaks because I know you have years of uncertainty still ahead.