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FIRAZYR is a medicine used to treat acute attacks of hereditary angioedema (HAE) in adults 18 years of age and older.

Jan 23

Becoming a Patient Advocate

Published on January 23, 2015 in About the Bloggers 2

As someone with HAE who is also a nurse, I think of myself first and foremost as a patient advocate, especially for the HAE community. I think it’s important that people learn more about HAE, specifically people in the field of medicine. I know I, for one, would not be standing here if not for the understanding of my grandmother and my hometown doctor.

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Jan 21

Having a Strange Swelling Disease

Published on January 21, 2015 in About the Bloggers 2

When I was a little kid, I used to do this odd thing where I’d go to the top of a small hill, strike a dignified pose, and stand completely still. “This,” I would say, “is where one day they will erect a statue of me.” Now don’t ask me what I thought I would do to deserve that! I only knew that somehow I wanted to leave my mark on the world.

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Dec 30

My Hereditary Angioedema Family

Published on December 30, 2014 in Getting Diagnosed 0

Because of my husband’s HAE, I’ve become close to many people in the hereditary angioedema community—they’ve become my “HAE Family.” I know I can count on them to understand what I’m going through, because they’ve been there, too.

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Dec 26

Hereditary angioedema is a serious disease. So I don’t want anyone to think I’m making light of my HAE—or anyone else’s. But at the same time, I can’t spend my life being grim and serious about HAE 24/7. Keeping a positive attitude helps me to cope and maintain perspective about HAE’s impact on my life.

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What is FIRAZYR?

FIRAZYR is prescribed to treat acute HAE attacks in adults 18 years of age and older.

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