I didn’t find out about my husband, David’s, hereditary angioedema (HAE) until after we were married. While it was a comfort to finally understand why he was in bed many times with pain, the concept that my husband had a chronic disease took a lot of getting used to. I wondered how we would carry on, but since finding out about his HAE, I’ve learned a lot, adapted my life to being his caregiver, and tried not to allow his HAE to define our lives.
Over the years, my husband David and I have often spent time together on the sofa, watching television. As you know, within an hour, you seem to end up watching more commercials than you do the TV show itself—and that includes commercials for prescription medications. David’s hereditary angioedema (HAE) was always at the forefront of my mind, so I’d watch those commercials and wonder, “When in the world will there be treatment options available for David’s HAE attacks?”
At the end of my six year search for a diagnosis, I was unbelievably relieved to hear the words “hereditary angioedema.” Finally, a name for my condition! But wait, “hereditary”? How was that possible? I was the only one in my family suffering from these debilitating attacks of swelling and pain.
For me, I sometimes feel like anything and everything can affect my hereditary angioedema. When the seasons change, so does the temperature—and my family’s routines. Those are just two of the three main changes that may mean a change in my acute HAE attacks, too.
My motto when it comes to overcoming my fears is this: Just breathe, and take the leap! But in some cases, like when my doctor and I discuss using FIRAZYR® (icatibant injection) to treat my acute HAE attacks, I make sure it’s an educated, well-trained leap! FIRAZYR is a medicine used to treat acute attacks of hereditary angioedema (HAE) in adults 18 years of age and older.