HAE is a rare condition, so finding the right HAE doctor can be difficult. But I want to share the questions that have helped me figure out what I want out of my doctor.
As I look back on my journey with hereditary angioedema (HAE), I feel that one of the challenges I, and others with hereditary angioedema, have faced is being understood. Our friends, family, and loved ones care deeply for those of us with HAE, but it can be hard for them to grasp what we are experiencing.
Leaving the doctor’s office with a diagnosis, I felt hopeful and optimistic. Yet, I still felt very much alone.
I have always tried very hard to remain positive and have a sense of humor in dealing with and talking about my hereditary angioedema and HAE attacks—especially in front of my daughters. [FIRAZYR® (icatibant injection) is a medicine used to treat acute attacks of hereditary angioedema (HAE) in adults 18 years of age and older.]
Dear Past Self, As I look back and think about how you have dealt with your husband’s hereditary angioedema (HAE) over the past 15 years, I can’t help but feel very proud.