Hey HAE Hereditary Angioedema Blog: Connect. Ask. Share.
FIRAZYR is a medicine used to treat acute attacks of hereditary angioedema (HAE) in adults 18 years of age and older.

Mar 19

As some of you may already know, I have been “living with HAE” for about 15 years. I don’t have HAE, but several of my loved ones do, including my husband. The journey of living with HAE as a caregiver can be exhausting, frustrating, and heartbreaking. But with the support I’ve received from my family—in all the forms that family takes—the weight of care giving is no longer quite so heavy on my shoulders.

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Jan 15

Blindsided by HAE

Published on January 15, 2014 in About the Bloggers 2

Hi, I’m Stacey and my husband, David, has HAE. I met David when we worked together as police officers. During my time on the force, I learned that it’s hard to help someone who doesn't want help or who is in denial. Little did I know, that lesson would hit home when I found out David has HAE. Using this blog, I hope to inspire others living with HAE—and their caregivers—to talk about this illness, to communicate openly, and to remember that they’re not alone.

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What is FIRAZYR?

FIRAZYR is prescribed to treat acute HAE attacks in adults 18 years of age and older.

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