One of the challenges of HAE is figuring out what will trigger an attack. For me, I would say one of my triggers is stress, which I think is common among us HAE folks.
Receiving the diagnosis of HAE as an adult was the most pivotal, joyous, and hopeful moment of my life. Not only did my agonizing journey for answers finally come to an end, but a new chapter of my life began with the referral to an immunologist I see today.
Twenty years ago, I would have said HAE is a nuisance…and the ultimate marriage test. I always seemed to have attacks at the worst possible moments, and I never wanted to be seen in public disfigured by swelling.
HAE has been a part of my life for a very long time. At first, I didn’t know what was happening to me when I had a stomach or hand attack, and then I was finally diagnosed with HAE when I was 20.
Hi, I’m Katie! I had no idea what HAE was when I had my first attack. Six painful years later, I was finally diagnosed. Now I’m charting my future by being active and taking responsibility for my health. You can follow my adventures on this blog!