Between working full-time and being a wife and mother, I haven’t always put my own needs first. For both my sake and my family’s, I’ve had to learn to be more mindful of my well-being. I pay closer attention to the “when” and “why” of my acute hereditary angioedema (HAE) attacks, and I talk about some of the triggers I’ve noticed in this video post.
Having cared for my husband, David, who has hereditary angioedema (HAE), for so long, one might think that I have come to terms with HAE. Well, I haven’t. But my denial isn’t based upon my inability to accept the disease itself; rather, it is denial regarding my inability to control the disease.
My journey to a hereditary angioedema (HAE) diagnosis was filled with many ups and many downs. Like a rollercoaster, there were frightening twists and turns, and many forces I had no control over. But no matter what, I tried to stay calm and keep moving forward, even when a trip to a hospital for help nearly broke my resolve and caused me to lose hope.
Having multiple family members diagnosed with hereditary angioedema (HAE), I’ve come to know HAE pretty well. Although, due to the unpredictability of the disease, there are still quite a few things I don’t understand. Luckily, having people around who understand my journey has resulted in a bond that’s helped me through many of the ups and downs of HAE.
For me, keeping the romance alive can be a challenge. It requires work and effort from both my husband and myself. Sometimes, there are outside forces hindering or halting romance, whether it’s work, kids, health issues, or anything in between. For someone like me, who is diagnosed with hereditary angioedema (HAE), my chronic disease can add another trial to the situation.