In working with my healthcare team, I have chosen to treat every HAE attack. I have learned that, with my body, even a small swell on my hand could eventually lead to a larger, more painful, attack. It could take hours or days for me to get to that point, but I don’t want to wait around to be sick and in pain later on. For me, early treatment is the key and making sure the people around me know about my HAE in case of an emergency.
Approaching my newly recommended gastroenterologist’s office for my second appointment, I felt my heart start to race. I had been in dozens of doctor’s offices, countless times before. Yet, this day was different. Today, my doctor had told me, he’d have answers. After six painful years of searching, my journey for a diagnosis was finally coming to an end.
I was 50 years old before I reached diagnosis, and it was a long road during which I felt tethered in place in a world of black and white. But in many ways, feeling tethered for so long made me appreciate getting a diagnosis so much more.
My husband didn't know what he was getting into when we were married all those years ago, since I hadn't had any recognizable hereditary angioedema (HAE) attacks before our wedding. However, even though HAE has brought us great pain and sorrow, he says he wouldn't have changed his mind—he wouldn't have left me at the altar! For that, I have to be thankful.
When my husband, David, decided to try FIRAZYR® (icatibant injection), a medicine used to treat acute hereditary angioedema (HAE) attacks in adults 18 years of age and older, we weren’t just concerned about the injections. We also worried about the cost of the medication and if our insurance would cover it. But with the helpful guidance of OnePath®, Shire’s product support service for eligible patients, we were able to navigate our way down the insurance road.