With my doctor’s help, I learned about FIRAZYR® (icatibant injection), a medicine used to treat acute hereditary angioedema (HAE) attacks in adults 18 years of age and older. I didn’t know what to expect at first. But with the help of my doctor and the advice from others also using FIRAZYR, I became more comfortable with FIRAZYR as part of my treatment plan.
I learned of my husband, David’s, hereditary angioedema (HAE) diagnosis approximately sixteen years ago; however, I remember it like it was yesterday. My husband grew up knowing he had HAE due to the long-documented family history of the disease. I, on the other hand, was unaware of his diagnosis until about a year or so after we were married. There finally came a day when he felt he could no longer shelter me from his reality.
I began to experience symptoms of hereditary angioedema (HAE) at a young age, but I wasn’t diagnosed with it until the age of 50, so my journey to a diagnosis was pretty long—but not uneventful.
HAE can impact a person’s life in a lot of ways, but there’s education, treatment and support. The infographic below features some great information about HAE that you can share with family and friends in support of hae day :-) on May 16th.
As the name implies, hereditary angioedema (HAE) usually "runs in families." Sometimes, there are multiple members diagnosed with HAE, like in my case. Three generations of my family have suffered from HAE attacks—so much so that we became “the family with that strange swelling disease.” I believe our situation has raised challenges, but it has also provided a certain amount of comfort.