You’ve heard the saying, “Life happens while you’re busy making plans”─ that is my life! I try to be prepared, but hereditary angioedema doesn’t always cooperate with me.
During a surprise birthday party for one of my close friends, I got a surprise of my own. Oh, the irony… We had just enjoyed a wonderful dinner with friends when, very quickly, I became nauseous and realized an acute HAE attack was coming on. So I let my husband know we needed to leave immediately.
Thankfully, I had my FIRAZYR® (icatibant injection) with me and was able to treat right away, just as my doctor had directed me to do. Within a few hours, I started feeling relief as my symptoms gradually subsided. But remember, this is just my experience. Yours might be different.
FIRAZYR is a medicine used to treat acute attacks of hereditary angioedema (HAE) in adults 18 years of age and older. FIRAZYR is an injection you can give yourself just under the skin, as soon as you recognize symptoms of an HAE attack, after you have been trained by a healthcare professional.
How quickly those symptoms came on just reinforced how prepared I need to be in case of an HAE attack. It also reminded me how I can’t take for granted what this disease is capable of. It’s always keeping me on my toes.
And for that reason, I do everything I can to make sure I’m prepared:
- I keep a supply of FIRAZYR on hand, especially when I’m away from home
- I have informed my local emergency responders of my HAE just in case I need to make a quick emergency call
- I keep track of my triggers that could cause an HAE attack
- Just being positive and not dwelling on what I can’t control helps me feel emotionally prepared. That way, I take everything one day at a time.
HAE has certainly made my life an uncertain one, but I do my best to prepare for that uncertainty. The more prepared I am, the more I feel like I’m better equipped to handle whatever HAE sends my way. The best I can do is know my body and do what I can to take care of it.
How do you prepare for the uncertainty of an HAE attack? Leave a comment below!
If you have HAE, you may want to talk with your doctor about treatment options. If you want to talk about FIRAZYR with your doctor, click here to sign up for more information, including a page that you can download and take with you to your next doctor’s appointment. If you and your doctor decide that FIRAZYR might be the right treatment option for you, he or she can request a single dose of FIRAZYR as a sample for you to try.