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FIRAZYR is a medicine used to treat acute attacks of hereditary angioedema (HAE) in adults 18 years of age and older.

Day by Day

My Three Greatest Support Systems

Published on October 24, 2014 in Day by Day

Just the other day, I was sharing my stressed feelings with a friend. She pointed out to me that I need to remember to utilize my support system.

However, I have discovered over the years that I need more than just one support system. The circumstances will determine which person or group of people I turn to for support. So, depending on the situation, I may call on:

  1. People living with HAE and their caregivers: While people who aren’t directly affected by HAE may be well-intentioned, they can only sympathize, not empathize, with some of the challenges my family faces. Sometimes that isn’t enough to make me feel better. Fortunately, I have met many who have been directly impacted by HAE. These people are “walking in my shoes,” and a simple text message, email, or phone call to a fellow HAE caregiver helps immensely.​

  1.  My parents, siblings, and close friends: They are always “on stand by” in case of an emergency. I call upon them to assist with doctor’s appointments or trips to the ER. I know that I can call on them whenever I can’t be present myself, or even to keep me company while my loved one deals with an acute HAE attack.

  1.  My medical support system: Over the years, my husband and I have worked very hard to stay involved within the HAE community, ensuring that everyone on our healthcare team is right for us. We are so lucky to have a wonderful allergy/immunology doctor that is well-versed in HAE and treatment options. We are also lucky to have the support of our OnePath® Case Manager to help with the insurance access and coverage issues.

When times get tough with HAE, I call upon my support systems. Who do you call? Leave a comment!


Managing HAE differs for everyone. Hear from Shire Ambassadors at an event near you. Click here for more information.


You are so right Stacey! I can't imagine going thru all of these things without the support of friends and family. So thankful, that my support is only a phone call or text away!

October 27, 2014

Thanks for your comment, Bobbi! I always enjoy hearing from fellow Shire Ambassador Bloggers and really appreciate the support. -Stacey

November 12, 2014

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What is FIRAZYR?

FIRAZYR is prescribed to treat acute HAE attacks in adults 18 years of age and older.

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