Hey HAE Hereditary Angioedema Blog: Connect. Ask. Share.
FIRAZYR is a medicine used to treat acute attacks of hereditary angioedema (HAE) in adults 18 years of age and older.

Day by Day

The Benefits of Tracking my Hereditary Angioedema Attacks

Published on February 11, 2015 in Day by Day

My mind can only hold so much before I begin forgetting things. I haven’t always been the best at documenting my HAE attacks. But keeping a record, whether it’s a journal or a document on my computer, not only benefits me, but my doctors as well. No one can keep track of what’s going on with me and my body better than I can—and it’s up to me to let my healthcare team in on that information.


It’s important to keep track of my HAE attacks because:

  • I can look for similarities among the attacks or possibly discover a new trigger for an attack. I do my best to be vigilant of the triggers that currently affect me, like stress and seasonal changes. There could be more, but I have to recognize the trigger first, before I can learn to look out for it.  
  • By rating the severity and location of my attacks as they happen, I have specific information to present to my doctor at my next appointment. He then can better assess my HAE and treatment plan.
  • Besides sharing this information with my doctor, I never know when I’ll need that information to show in the future. If I have it on hand, I’ll know right where to find it.


These days, I’m dealing with my HAE attacks by treating with FIRAZYR® (icatibant injection), a medicine used to treat acute attacks of HAE in adults 18 years of age and older, working with my doctors, and relying on my loved ones and the friends I’ve made in the HAE community. But there are always extra steps I can take. Keeping track of my HAE attacks is one more thing I can do to ensure I’m being my own best advocate on my journey with HAE.


Why do you think keeping track of your HAE attacks is important? Leave a comment!




Patient experiences differ for everyone. Hear from a Shire Ambassador at an event near you. Click here for more information.

Add Comment

The information on this page is owned and controlled by Shire. All submissions will be reviewed and must be approved by Shire before being posted. Comments that do not directly relate to the topic, are factually inaccurate or misleading, or are spam, inappropriate, use profanity or are defamatory will not be posted.

Please keep your comments respectful, appropriate and do not reference any product names or product information. We will not post comments that include drug names or descriptions. Please note that Shire may choose not to post, or may remove, a comment for any reason at any time. Comments on the page from members of the public do not necessarily reflect the views of Shire and Shire does not endorse any content added by other users.

We are required to record and handle the submitted comments in a specific manner to monitor the safety of our product. If you have experienced a side effect or have a complaint specific to a Shire product, please contact your healthcare provider. In addition, we encourage you to report the event to us by calling +1-800 828-2088 or +1-888-300-6414, where someone is available to speak with you.

The information on this page is intended for residents of the United States only and is not meant to substitute for the advice provided by a medical professional. Always consult a physician if you have health concerns.

What is FIRAZYR?

FIRAZYR is prescribed to treat acute HAE attacks in adults 18 years of age and older.

Get the facts »