Hey HAE: Connect. Ask. Share.
FIRAZYR is a medicine used to treat acute attacks of hereditary angioedema (HAE) in adults 18 years of age and older.
Share / Send / Save

Day by Day

What Being a Shire Ambassador Means to Me

Published on June 11, 2014 in Day by Day

I am always surprised, in a good way, when I participate in a live educational program as a Shire Ambassador, for lots of reasons. But here are my top three:

Reason 1:

  • I never know how my story is going to resonate with someone else
    • One time, I had a gentleman come up and thank me. He was visibly emotional. He introduced himself and his wife to me, and then said that he had not been fair to his wife all these years. Something I said had truly connected with him, and he said he finally felt like he understood the impact HAE had on his wife. He apologized to her and told her that because of what he had learned at the program, he would be more understanding of her condition from that moment on. WOW—that called for a group hug!

Reason 2:

  • Being reminded that spreading awareness about HAE isn’t just “a nice thing to do;” it’s vitally important
    • Every time I meet someone who has lost a loved one to this condition, I am heartbroken and even more driven to continue to be an advocate and bring awareness and understanding. Hearing stories and sharing is powerful.

Reason 3:

  • Sometimes, my program is the first HAE educational program a person’s ever attended; he or she doesn’t know anyone else who has HAE
    •  It will always have an effect on me when I am the first HAE patient someone meets. It is often emotional. I completely understand that feeling of meeting someone else who has HAE the first time. It brought an array of feelings that I will never forget—someone else kinda goes through what I go through!

For these, and so many more reasons, I am forever grateful for the opportunity to be a Shire Ambassador, and I continue to be blessed.

What have you learned from hearing the story of someone who has HAE? Please leave a comment!

--Bobbi

Add Comment


The information on this page is owned and controlled by Shire. All submissions will be reviewed and must be approved by Shire before being posted. Comments that do not directly relate to the topic, are factually inaccurate or misleading, or are spam, inappropriate, use profanity or are defamatory will not be posted.

Please keep your comments respectful, appropriate and do not reference any product names or product information. We will not post comments that include drug names or descriptions. Please note that Shire may choose not to post, or may remove, a comment for any reason at any time. Comments on the page from members of the public do not necessarily reflect the views of Shire and Shire does not endorse any content added by other users.

We are required to record and handle the submitted comments in a specific manner to monitor the safety of our product. If you have experienced a side effect or have a complaint specific to a Shire product, please contact your healthcare provider. In addition, we encourage you to report the event to us by calling +1-800 828-2088 or +1-888-300-6414, where someone is available to speak with you.

The information on this page is intended for residents of the United States only and is not meant to substitute for the advice provided by a medical professional. Always consult a physician if you have health concerns.

What is FIRAZYR?

FIRAZYR is prescribed to treat acute HAE attacks in adults 18 years of age and older.

Get the facts »

Upcoming Events