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FIRAZYR is a medicine used to treat acute attacks of hereditary angioedema (HAE) in adults 18 years of age and older.

Getting Diagnosed

My Thoughts Upon Learning That My Husband Had Hereditary Angioedema

Published on December 03, 2014 in Getting Diagnosed

My husband, David, has been living with hereditary angioedema (HAE) almost all of his life. But I first learned of his HAE shortly after we were married. From then to now, my thoughts have taken a turn:

At first, I thought…

  1. “Well, that explains it!” I never understood why David would withdraw from me and need to be in bed for days at a time. He didn’t want to see a doctor, so I assumed he wasn’t feeling that bad. Soon after, I realized why he didn’t seek medical help: There was nothing they could do for him at the time. Part of me was relieved to know why he had seemed practically bedridden so often, and the other part was just plain scared.

After taking some time to process the news of his HAE, I then thought…

  1.  “How will this affect me and my marriage?” I’m embarrassed to admit that my thoughts immediately turned selfish. I wondered how his HAE was going to affect ME, and in turn, how it might affect US. It would have been nice to have been armed with this information prior to getting married. I don’t mean to imply that I would not have married David knowing he had HAE; it was just a lot to think about as a newlywed. 

Finally, I decided that…

  1.   “This disease will not define our life together.” This thought remains in my head to this day, and it gives me encouragement and strength to carry on as a caregiver. There are times when I get frustrated or burned out, but I dig down deep inside my soul and hold onto this thought for courage. And by staying informed, involved, and persistent, I know I’m doing everything I can to offer support to the man I love.


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What is FIRAZYR?

FIRAZYR is prescribed to treat acute HAE attacks in adults 18 years of age and older.

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