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FIRAZYR is a medicine used to treat acute attacks of hereditary angioedema (HAE) in adults 18 years of age and older.

HAE and Family

3 Things That Inspired Me to Keep Going on My Road to an HAE Diagnosis

Published on December 17, 2014 in HAE and Family

I’ve talked about my journey to diagnosis in some of my blogs, so some of you may know that I reached a point where I didn’t think I could face going to another doctor’s appointment. I was so tired of hearing the heartbreaking words “We don’t know what’s wrong with you.”

Here are 3 things that inspired me to keep going when I felt like quitting:

  1.  Family

My greatest inspiration was my family. Even through the darkest times, they stood by me. They held my hand, offered me comfort and love, and never wavered in their support of me. I remember being terrified, suffering from severe attacks, and my mother staying up with me all night. Her presence was so soothing. Likewise, my father accompanied me to countless appointments, calming my nerves with humor and encouragement. I knew both of them were suffering with me. They wanted me to find relief, and I wanted answers for all of us. When I fell down, they picked me back up. We all made it through together. They truly helped me persevere on my road to diagnosis.

  1.  Fellow Patients

Before my diagnosis, my life had become a series of revolving doors, in and out of doctor’s offices. It always felt like I was caught up in a whirlwind, and I was often terrified. I grew tired of getting my hopes up, and I wanted to shut down. Yet, every time I was close to losing faith, my fellow patients who I met along the way would be there for support. The courage they showed pushed me to stay strong, and be brave for others.

  1.  Hope

Above all, I held on to hope—even when I didn’t realize it. For some people this could be faith, or a belief in a greater power, or destiny or fate. For me, it was simply a hope that if I kept moving forward, good things would come. I knew there had to be answers out there. I knew I had the potential to live a happy life. I just had to keep fighting for answers. Even in the darkest times, there was always a tiny spark of hope inside me that refused to be quenched. I encourage you all to follow your heart and dreams. One day at a time, just stay true to your journey—you never know what tomorrow holds!   

What kept you going on your own journey to diagnosis? Leave a comment!


The journey to an HAE diagnosis differs for everyone. Hear from Shire's Patient Ambassadors at an event near you. Click here for more information.

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What is FIRAZYR?

FIRAZYR is prescribed to treat acute HAE attacks in adults 18 years of age and older.

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