As someone with HAE who is also a nurse, I think of myself first and foremost as a patient advocate, especially for the HAE community. I think it’s important that people learn more about HAE, specifically people in the field of medicine. I know I, for one, would not be standing here if not for the understanding of my grandmother and my hometown doctor.
About the Bloggers
When I was a little kid, I used to do this odd thing where I’d go to the top of a small hill, strike a dignified pose, and stand completely still. “This,” I would say, “is where one day they will erect a statue of me.” Now don’t ask me what I thought I would do to deserve that! I only knew that somehow I wanted to leave my mark on the world.
Sometimes it’s hard to figure out if I’m having an HAE attack or if some other medical issue is the problem. Hereditary angioedema swelling can happen in different parts of the body and be caused by so many different triggers—at least that’s how it is for me.
Hi, I’m Stacey and my husband, David, has HAE. I met David when we worked together as police officers. During my time on the force, I learned that it’s hard to help someone who doesn't want help or who is in denial. Little did I know, that lesson would hit home when I found out David has HAE. Using this blog, I hope to inspire others living with HAE—and their caregivers—to talk about this illness, to communicate openly, and to remember that they’re not alone.
Hi, I’m Katie! I had no idea what HAE was when I had my first attack. Six painful years later, I was finally diagnosed. Now I’m charting my future by being active and taking responsibility for my health. You can follow my adventures on this blog!