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FIRAZYR is a medicine used to treat acute attacks of hereditary angioedema (HAE) in adults 18 years of age and older.

About the Bloggers

Jan 23

Becoming a Patient Advocate

Published on January 23, 2015 in About the Bloggers 2

As someone with HAE who is also a nurse, I think of myself first and foremost as a patient advocate, especially for the HAE community. I think it’s important that people learn more about HAE, specifically people in the field of medicine. I know I, for one, would not be standing here if not for the understanding of my grandmother and my hometown doctor.

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Jan 21

Having a Strange Swelling Disease

Published on January 21, 2015 in About the Bloggers 2

When I was a little kid, I used to do this odd thing where I’d go to the top of a small hill, strike a dignified pose, and stand completely still. “This,” I would say, “is where one day they will erect a statue of me.” Now don’t ask me what I thought I would do to deserve that! I only knew that somehow I wanted to leave my mark on the world.

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Jan 15

Blindsided by HAE

Published on January 15, 2014 in About the Bloggers 2

Hi, I’m Stacey and my husband, David, has HAE. I met David when we worked together as police officers. During my time on the force, I learned that it’s hard to help someone who doesn't want help or who is in denial. Little did I know, that lesson would hit home when I found out David has HAE. Using this blog, I hope to inspire others living with HAE—and their caregivers—to talk about this illness, to communicate openly, and to remember that they’re not alone.

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Oct 04

Creating an HAE Crew

Published on October 04, 2013 in About the Bloggers 2

Hi, I’m Katie! I had no idea what HAE was when I had my first attack. Six painful years later, I was finally diagnosed. Now I’m charting my future by being active and taking responsibility for my health. You can follow my adventures on this blog!

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What is FIRAZYR?

FIRAZYR is prescribed to treat acute HAE attacks in adults 18 years of age and older.

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