HAE attacks seem to interrupt my life. But by working with my doctor, I have a personal plan in place for when I have an acute HAE attack. The knowledge of having a plan gives me a feeling of reassurance with a disease that seems to make my life seem so out of control at times.
Attack the Attacks
Caring for someone who experiences HAE attacks can be challenging, so it's important to be alert and prepared. Thankfully, over time, I've realized that I often can tell when my loved one is experiencing an attack. Here's what I do (and don't do) when my loved one experiences an acute HAE attack.
During an HAE attack, I used to catch myself downplaying the symptoms to myself, thinking that I’d wait for a “big one” before treating. But now I know I don’t have to wonder about “ifs” and “whens” when it comes to treatment and I don’t have to simply tough it out and hope for the best—there is something I can do for my HAE.
My “treatment plan” for HAE attacks—before I had an actual treatment plan in place? Tough it out!
It has taken some time for my healthcare team and me to find an HAE treatment plan that works best for me, but we think we’re on the right track.