From assisting me with specialty pharmacies to insurance questions, OnePath®, Shire’s personalized product support service, has helped me in numerous ways—some of which surprised me. I can’t thank them enough for all they have done.
Day by Day
Due to the unpredictability of hereditary angioedema (HAE) attacks, a day in my life, as a person with HAE, is a bit different from what I would consider the norm. I’m oftentimes thinking about when, and if, the next attack will happen. Still, I do my best to not focus on that and take life one day at a time.
OnePath® is Shire’s personalized product support service. For me, I look at OnePath as being similar to a GPS: My Case Manager is there to help me navigate certain aspects of my HAE treatment journey, and my treatment plan that my physician developed with me is the map we’re following.
Of the people I have met, I’ve found that many of them don’t know about hereditary angioedema (HAE). Even some doctors are unfamiliar, leaving me to explain my disease when I have to make a trip to the emergency room with an HAE attack. For these reasons, I am dedicated to informing others about HAE.
Juggling work and family while having hereditary angioedema (HAE) is not an easy task. I have learned that, for me, open communication is the key to this juggling act, but while it is important to be candid about my condition, teamwork is just as essential.