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FIRAZYR is a medicine used to treat acute attacks of hereditary angioedema (HAE) in adults 18 years of age and older.

Getting Diagnosed

Nov 04

Often, when I talk with newly diagnosed hereditary angioedema (HAE) patients, they have many questions. Sometimes they’re looking for validation, answers about their disease and attacks, or just another person to talk to on a similar journey. Having had HAE for a while now, I hope my advice and experiences can provide people with a sense of support.

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Jul 24

For a long time, I wasn’t very open to talking about my hereditary angioedema (HAE). I didn’t want anyone to wonder what was wrong with me or treat me differently. I felt like I had no one to talk to who could possibly understand what I was feeling both physically and emotionally. Plus, I didn’t really understand how HAE could affect me. I felt very alone. But I soon realized that, by spreading awareness, I could help not only myself and my family but the larger HAE community.

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Jul 09

Advice for the Newly Diagnosed

Published on July 09, 2015 in Getting Diagnosed 0

For me, it took many years of misdiagnosis by well-meaning physicians to reach the correct diagnosis of hereditary angioedema (HAE.) When I finally received the HAE diagnosis, I wondered, Are you sure? What are the odds? HAE is rare. Looking back, my road to diagnosis and not having answers was emotionally as painful as the disease itself. If I had known then what I know now, I believe I could have spared myself a good deal of anguish.

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Jun 19

My journey to a hereditary angioedema (HAE) diagnosis was filled with many ups and many downs. Like a rollercoaster, there were frightening twists and turns, and many forces I had no control over. But no matter what, I tried to stay calm and keep moving forward, even when a trip to a hospital for help nearly broke my resolve and caused me to lose hope.

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What is FIRAZYR?

FIRAZYR is prescribed to treat acute HAE attacks in adults 18 years of age and older.

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