I consider myself pretty lucky when it comes to my experiences with doctors. Unlike many of my friends with HAE, I was diagnosed without seeing multiple physicians over a long period of time.
As far as I was concerned, my life was completely perfect until my first attack shattered my carefree childhood at the age of 12 [Note that FIRAZYR® (icatibant injection) is only indicated for adults 18 years of age and older with HAE. It is not known if FIRAZYR is safe or effective for children under 18 years of age]. Overnight, I went from being healthy and active to debilitated, scared, and shattered.
Receiving the diagnosis of HAE as an adult was the most pivotal, joyous, and hopeful moment of my life. Not only did my agonizing journey for answers finally come to an end, but a new chapter of my life began with the referral to an immunologist I see today.