As far as I was concerned, my life was completely perfect until my first attack shattered my carefree childhood at the age of 12 [Note that FIRAZYR® (icatibant injection) is only indicated for adults 18 years of age and older with HAE. It is not known if FIRAZYR is safe or effective for children under 18 years of age]. Overnight, I went from being healthy and active to debilitated, scared, and shattered.
One of the challenges of HAE is figuring out what will trigger an attack. For me, I would say one of my triggers is stress, which I think is common among us HAE folks.
Receiving the diagnosis of HAE as an adult was the most pivotal, joyous, and hopeful moment of my life. Not only did my agonizing journey for answers finally come to an end, but a new chapter of my life began with the referral to an immunologist I see today.
Twenty years ago, I would have said HAE is a nuisance…and the ultimate marriage test. I always seemed to have attacks at the worst possible moments, and I never wanted to be seen in public disfigured by swelling.
HAE has been a part of my life for a very long time. At first, I didn’t know what was happening to me when I had a stomach or hand attack, and then I was finally diagnosed with HAE when I was 20.