Meet Stacey, a Shire Caregiver Ambassador
STACEY: My name is Stacey. I've been married for 16 years, and David and I have two children.
My husband suffers from HAE, and as a result, we have become a family that requires a lot of planning and organization. I not only have to keep my doctor's appointments straight, but I have to keep track of his — keep track of what could cause an attack and stay very organized as far as, you know, the insurance and what the game plan is.
You know, in this day and age, we're all very busy with sports and working full-time and things like that, and the calendar fills up quickly, and it's inevitable I'll say that we will be somewhere, and people are counting on us being there to do our part and then, you know, I have to make the phone call to say we're not going to be there.
I at one point in time and still struggle from time to time thinking about whether this disease is gonna define who we are. Keeping involved in the HAE community and networking and staying organized and planning has helped us decide that it will not define who we are. In the big scheme of things, you know, this is something we can deal with.
As a caregiver, I thought it was very important to educate myself about FIRAZYR because, being the organizer and the planner of the family, it really was up to me to seek out the treatments. The doctor made sure that both of us were trained by a healthcare professional so that we both were aware on how to administer the product.
There's so much of HAE that's out of your control…when the attacks are gonna occur. I like to encourage others to focus on what is within their control. It's difficult at times to find something positive in HAE. Some of the positives that I find are taking time to control what I can control and being happy that I have the ability to put a plan in place and to make friends along the way.
NARRATOR: Indication: FIRAZYR® (icatibant injection) is a medicine used to treat acute attacks of hereditary angioedema (HAE) in adults 18 years of age and older.
Important Safety Information: Laryngeal attacks can become life threatening. If you have an HAE attack of the throat (laryngeal attack), inject FIRAZYR and then go to the nearest hospital emergency room right away.
The most common side effects of FIRAZYR include:
- redness, bruising, swelling, warmth, burning, itching, irritation, hives, numbness, pressure, or pain at the injection site
- too much of an enzyme called transaminase in your blood
The safety profile of FIRAZYR in patients who gave themselves the injection was similar to that in patients who had the injection given by a healthcare professional.
Tell your healthcare provider if you have any other medical conditions, if you are breastfeeding or plan to breastfeed, or if you are pregnant or planning to become pregnant. FIRAZYR has not been evaluated in pregnant or nursing women. You and your healthcare provider will decide if FIRAZYR is right for you.
If your symptoms continue or come back, you may repeat your FIRAZYR injection at least 6 hours apart. Do not use more than 3 doses of FIRAZYR in a 24-hour period.
Tiredness, drowsiness, and dizziness have been reported following the use of FIRAZYR. If this occurs, do not drive a car, use machinery, or do anything that needs you to be alert.
Tell your healthcare provider if you have any side effect that bothers you or that does not go away. For more information about FIRAZYR, ask your healthcare provider. For further information, please see the full Prescribing Information, including Patient Information. You can also call Shire at 1-866-888-0660.
You are encouraged to report negative side effects of prescription drugs to the FDA. Visit www.fda.gov/medwatch, or call 1-800-FDA-1088.