I know that first HAE attack at your throat seems like the most helpless day of your life. You are busy trying to
- remodel a house for your new family,
- hold down a full time job, and
- take care of your wife, who is six months pregnant…
But every hour, it gets a little harder to breathe.
Your wife nags you to call a doctor or go to the hospital, but the hospital is expensive and you believe there is nothing they can do. It’s a shame that you won’t seek medical attention until you are unable to swallow, and minor exertion, like lifting ten pounds, leaves you gasping for air. This is your first throat attack, and you don’t realize how serious it can be, and how important it is to go to the hospital.
But going to the hospital turns out to be a major turning point in your life, mostly because the hospital staff hasn’t seen anything like it before. They call a local specialist for advice, who stays on the phone with them until you’re treated. He eventually becomes your new specialist, and is very active in HAE studies that lead to new treatments coming available.
You will become very active in the HAE community and meet amazing patients who share similar stories. Every one of them will have unique stories of highs and lows in their lives with HAE. Each of these stories will remind you how important it is to live each day to the fullest, and stay as active in the HAE community as possible.
You are so concerned that HAE will take away from time with your son. But many exciting things will come along, and eventually you will learn to both manage your HAE and spend the time you want with your family.
There will be more bumps in the road after that first throat attack, but each one opens your eyes wider to how much you love your children, and how special life is.
So keep faith, stay focused, and never take a day for granted.
Your Future Self
The journey to an HAE diagnosis differs for everyone. Hear from Shire's Patient Ambassadors at an event near you. Click here for more information.